531
Today is the day...today James is having his surgery. He is officially the first person in the U.S. to have this procedure done. Due to finances we couldn't make it out there for the surgery. For what ever reason every single way was blocked. So[...]
531
The surgery is scheduled for the 26th now....it was postponed due to fighting with the FDA. Basically they want James on his death bed in order to do the surgery. It was confusing because they had approved it then unapproved...now its approved[...]
531
Ok...I left off sometime in December. I am writing this for everyone to know...everyone who is praying for James. The prayers for the sleeve for the conduit have come through. The FDA has approved it for limited use. James wants to go through[...]
531
Yesterday we found out that James not only has signed a DNR but that he is opting out of not having anymore surgeries. He says that he doesn't want to go through anymore of those and just spend the rest of his time with his family. They are starting[...]
531
Just two days ago I found out that my husband had signed me up to do a dessert. Thanks Alan. (To give him credit he did say it was okay not to do it.) Maybe it was a good thing because it got me out of a funk.[...]
531
As you all know I have been in crisis mode since we found about James' prognosis. The last time I had checked the polls there was someone who was beating me by over 50 votes. I had campaigned hard.... some of you may know why I campaigned so[...]
531
Just 5 minutes ago I received a phone call from my husband. The conduit in James' heart is leaking severely. There are only two options. 1. There is a device that is only approved in Europe. Its sort of a sleeve. They have to test James to see[...]
531
I have lost a lot of sleep over this. Point Blank: I am PISSED . I know I am overly sensitive. I know that I am passionate. I know that I have these faults. I have learned to let that go sometimes and reassess how I feel when I am calmed down.[...]
531
Please vote for me in Iron Cupcake! My entry is a apple persimmon pudding cake with yogurt cream cheese frosting. Decorated with sliced almonds and a handmade-homemade marzipan pumpkin! Here is the link[...]
531
I found this site that is giving away two computers. Some of you may know that I suffered a computer death about a month ago. I am now sharing my husband's rickity old computer lol. I would love to give him this new one because he never buys[...]